Thursday, December 10, 2009

Intro:

As some of you may or may not know, I have a form of Muscular Dystrophy (MD) known as Charcot- Marie-Tooth (CMT) disease. Although this is one of the most common forms of MD — effecting one in every 2,500 people— medical science is still striving to develop a cure. Recently, I have been thinking about how I could help support the efforts put forth by the Charcot-Marie-Tooth Association beyond my personal contributions. I joined their board in April of 2009 and have decided to share my involvement. But how? I had to ask myself; do we need one more charity dinner.... or one more auction.... or one more walkathon? My answer was no, but there is a catch… or rather a hit. In an effort to raise awareness and funds, no matter how self serving or off the wall it may sound, I decided on a new approach.
For the past few years, I’ve attended The San Francisco Giants Fantasy Camp in Arizona. This year, it is scheduled for the week of January 24th, 2010. I am asking that you commit to “X” amount of dollars to CMT Research based on my “legendary baseball skills.” For example, if I make ten base hits during
the week of camp and you pledge $20.00 per base hit, then your total donation will be $200 (10 hits x $20 = $200). Simple, right?
I truly believe your participation will be fun but, more importantly, rewarding for a cause that is obviously close to my heart and consciousness. For now, I am one of the lucky ones living with less debilitating effects from CMT but there are so many who suffer. I hope you take a moment to review the enclosed
CMT information and visit the CMTA website for updates on their research.
With sincere thanks for your consideration,
Vasi Vangelos